Wednesday, November 6, 2013

Edgars

29.04.2013.
Autor: Ilze Skuja
PHOTO DONATION: Ilmārs Znotiņš

Edgars lives together with his mother, sister and father in Riga, Dreiliņi. Two years ago the whole family moved from Daugavpils to Riga. After all, Riga offers greater opportunities for finding a job, as well as specialists, gymnastics and massages are more available for Edgars.
During the visit six-year-old Edgars showed great interest in guests; he liked to have his photos taken, played ball with us, laughed and was delighted about the attention paid to him.

During the pregnancy the mother started to have health problems; her temperature increased and then decreased, and then everything repeated again. Infection, which eventually caused indelible consequences for the son’s health, wormed its way into mother’s organism. Edgars was born prematurely; both cerebral hemispheres had haemorrhage. He was born with very small weight – 1,370 g and 36 cm tall.
As mother said - he was small as a doll. After the birth, doctors’ diagnoses were cheerless; mother was prepared for the worst and was told that Edgars might even not make it out. If he survives, he will not smile, will not talk, will not recognize anyone, he will sleep and stare at one point. Now, looking at her little son, the mother says: “Thank God, he has emotions, he recognizes all of us, and he is lively and nice boy, only a bit different from others....”

Edgars’ diagnoses are severe: hydrocephalus (increase of the amount of cerebrospinal fluid in the cavity of the skull); infant cerebral palsy; right-sided spastic hemiparesis, due to which there are functional disorders, muscle hypertonia.

As it is with children with such diagnoses, the development occurs slowly and is delayed. Up to the age of 7 months the condition was more or less stable, he moved his legs and arms, but then the first teeth appeared and health problems started – the boy started to lose weight and became more passive.

The parents work with Edgars, they do gymnastics and have already visited Vaivari Rehabilitation Centre several times. They also went to rehabilitation to Ukraine, Truskavets. After the rehabilitation course in Truskavets, Edgars learned to crawl on his stomach, but, unfortunately, it is his only achievement.

The mother works at Seaside Boarding School as a kindergarten teacher in a group of autistic children. The father has a job; however, in order to take care of the child in everyday life and to earn necessary resources for expensive therapies, there is no money for everything. The mother is having additional studies in two specializations at once – special education teacher and teacher-speech therapist (or speech pathologist); she wakes up at 6 in the morning, she has to be at work at 8 and makes it home only late in the evening. The elder sister, twelve-year-old Ērika helps a lot. On week-end mornings she dresses and feeds her brother, so her mommy can have a sleep a little longer. Edgars likes listening to fairy-tales read by the sister; he likes flipping through books, he likes listening to music – after waking up and opening his eyes, he instantly asks to turn on the music.  Edgars goes into raptures about the games together with the sister; yet, the father is always the chief, the son has a very strong link with the father.

Parents have found information about the dolphin therapy in Ukraine, which might help Edgars’ development. Since such therapies are very expensive, 2,235 LVL, the parents ask for all our support necessary for Edgars to be able to go together with his mother to so much needed rehabilitation. Each parent is searching for ways how to help his child. Dolphin therapy is one of the possibilities of helping the boy.

Yet, at the moment the most topical problem is a special pram in order for Edgars to be able to normally go for walks during summer. State paid pram will be provided only in a half a year (!); yet, the whole summer is ahead and walks in the open air are particularly useful for Edgars. At the moment, the walks occur by going to the forest and opening a car door, but such “walks”, of course, cannot compensate walks in a pram, when everything can be seen and understood. The price of the pram is 700 LVL.

Let’s help Edgars feel the magic of summer during the walks and go to dolphin therapy.

2,935 LVL are necessary in total.

Let’s help!


SUM STILL NEEDED: 2108.53 LVL (from 2,935.00 LVL; 27.11.13.*)
* We will regularly update the list of donators and the amount of help provided.
* In our next photo story we will definitely inform about the use of donations

MANY THANKS TO EDGAR’S ANGELS: 
Anonīms ziedotājs – LVL 6,- (16.05.13.)
Vladimirs Šults – LVL 10,- (20.05.13.)
Nataļja Barigina – LVL 5,- (27.05.13.)
Tatjana Podze – LVL 6,- (27.05.13.)
Jūlija Ždanova – LVL 5,- (28.05.13.)
Anonīms ziedotājs – LVL 5,- (29.05.13.)
Gints Timo?ko – LVL 100,- (29.05.13.)
Marija Šapkina-Savci – LVL 15,- (29.05.13.)
Anonīms ziedotājs – LVL 10,- (30.05.13.)
Andrejs Jeļisejevs – LVL 5,- (31.05.13.)
Anonīms ziedotājs – LVL 10,- (31.05.13.)
Anonīms ziedotājs – LVL 20,- (06.06.13.)
Aigars Rozentāls – LVL 10,- (07.06.13.)
Linda Riekstiņa – LVL 10,- (07.06.13.)
Anonīms ziedotājs – LVL 30,- (07.06.13.)
Mrs Top of the World konkursa laikā savāktie līdzekļi – LVL 97,55 (07.06.13.)
Anonīms ziedotājs – LVL 5,- (10.06.13.)
Anonīms ziedotājs – LVL 5,- (11.06.13.)
Anonīms ziedotājs – LVL 5,- (14.06.13.)
Anonīms ziedotājs – LVL 2,- (18.06.13.)
Anonīms ziedotājs – LVL 50,- (01.07.13.)
Anonīms ziedotājs – LVL 10,- (17.07.13.)
Anonīms ziedotājs – LVL 50,- (19.07.13.)
Anonīms ziedotājs – LVL 3,- (25.07.13.)
Viktors Bolbats – LVL 50,- (05.08.13.)
Anonīms ziedotājs – LVL 5,- (14.08.13.)
Natālija Tumševica un draugi – LVL 250,- (26.08.13.)
Jevgēnija Revo – LVL 55,- (07.10.13.)
Ilze Raudova – LVL 5,- (11.10.13.)
Labo darbu nedēļas laikā Arēnā Rīga Bumbiņu lietus akcijā saziedotie līdzekļi – LVL 282,- (13.10.13.)
Tomass Tankelsons – LVL 5,- (15.10.13.)
Anonīms ziedotājs – LVL 10,- (16.10.13.)
Kristine Jermanova – LVL 10,- (18.10.13.)
Anželika Romanova – LVL 13,- (21.10.13.)
Ruslana – LVL 10,- (22.10.13.)
Anonīms ziedotājs – LVL 10,- (23.10.13.)
Anonīms ziedotājs – LVL 2,- (24.10.13.)
Anonīms ziedotājs – LVL 3,- (24.10.13.)
Anonīms ziedotājs – LVL 5,- (24.10.13.)
Anonīms ziedotājs – LVL 10,- (24.10.13.)
Anonīms ziedotājs – LVL 10,- (24.10.13.)
Anonīms ziedotājs – LVL 10,- (24.10.13.)
Anonīms ziedotājs – LVL 5,- (24.10.13.)
Karina Demidko – LVL 5,- (24.10.13.)
Jeļena Stirna – LVL 10,- (24.10.13.)
Inna Pupina – LVL 2,- (24.10.13.)
Anonīms ziedotājs – LVL 5,- (25.10.13.)
Anonīms ziedotājs – LVL 5,- (25.10.13.)
Natālija ?avrida – LVL 10,- (25.10.13.)
Jeļena Hodarenoka – LVL 10,- (28.10.13.)
Anonīms ziedotājs – LVL 5,- (28.10.13.)
Anonīms ziedotājs – LVL 3,- (30.10.13.)
Anonīms ziedotājs – LVL 5,- (30.10.13.)
Anonīms ziedotājs – LVL 20,- (31.10.13.)
Anonīms ziedotājs – LVL 10,- (04.11.13.)
Anonīms ziedotājs – LVL 30,- (06.11.13.)
Anonīms ziedotājs – LVL 10,- (08.11.13.)
Olga T. – LVL 10,- (08.11.13.)
Ilona Romaņenko – LVL 8,- (14.11.13.)
Anonīms ziedotājs – LVL 5,- (15.11.13.)
Anonīms ziedotājs – LVL 2,- (15.11.13.)
Anonīms ziedotājs – LVL 3,- (15.11.13.)
Anonīms ziedotājs – LVL 3,- (15.11.13.)
Marina Jansone – LVL 10,- (15.11.13.)
Karina Zindra – LVL 15,- (15.11.13.)
Jekaterina Gološčapova – LVL 5,- (15.11.13.)
Anželika Romanova – LVL 10,- (15.11.13.)
Anonīms ziedotājs – LVL 5,- (19.11.13.)
Anonīms ziedotājs – LVL 5,- (27.11.13.)
Vera Kudrjavceva – EUR 15,- (10.01.2014)
Agnese Treilone – EUR 10,00 (28.08.14.)

Attending doctors and parents have decided that the rehabilitation program in Saint-Petersburg, which Edgars is going to visit in January 2014 for the second time already, will be the most useful for him. We will keep our fingers crossed! We will report on the results.

Many thanks to the society “Nicole Smile” (http://www.nicolesmile.lv/lv/index.html) for the donated EUR 1883.20 for the rehabilitation program.
 

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