Tuesday, February 12, 2013

Gustavs Marcis and his family



12.02.2013.
Autor: Viktorija Krone
PHOTO DONATION: Artūrs Romanovskis
Gustavs and his three sisters live in Jaunpiebalga. His older sister Sintija has already started school. His younger twin sisters Amanda and Daniela stay at home with their mom and Gustavs.

When we arrived we found Gustavs Marcis (or Gustavinsh, as his mom calls him) lying on the couch. His big, beautiful eyes were examining the world around him. He was watching his sisters running around with a smile. At first sight Gustavinsh, who was one and a half year old at the time of our visit, appeared healthy and active. Only a closer look revealed the true nature of his condition.

Nothing seemed to be wrong with Gustavs when he was born. However, during one of the first medical examinations his doctor noticed the boy’s head was abnormally big for his age. As a result, Gustavs got hospitalised and underwent his first surgery. Doctors were not very hopeful, but the boy’s mother refused to give up. She did her best and prayed for his health, and the child eventually recovered. However, as is often the case in such situations, Gustav’s immune system has become very weak. The boy is extremely susceptible to infectious diseases.

Soon after the surgery Gustavinsh contracted a staphylococcal infection and was given antibiotics. The boy eventually recovered, but the illnesses took a great toll on his health. Gustav’s mother took him to local rehabilitation centres in Gaiļezers and Vaivari, but they were unable to complete the course of rehabilitation due of Gustav’s repeated illnesses.

Gustav’s clinical diagnosis is: congenital abnormality of the CNS development, large porencephalic cyst in the left cerebral hemisphere, hydrocephalus, diffuse muscular hypotonia with elements of high muscle tone, delayed psychomotor development.

When Gustavinsh is nervous his body reflects the stress. The little boy has to wear orthoses for his hands to develop correctly. Gustavs has motor development problems. He does not yet have a refined grasp, but he does take genuine interest in the world around him. The boy cannot roll over from back to stomach. When placed on his tummy he cannot get up on his hands and stabilise himself since it is difficult for him to hold his head up. The child neither holds his head up well when pulled into a standing position, nor can stand on his feet unsupported. Gustavs seems very eager to move independently, but his own strength is insufficient. The boy expresses emotions and takes an active interest in the surrounding environment. He feels most comfortable in his mother’s and his grandmother’s arms.

In early March Gustavs will go to Liepaja to meet rehabilitation consultants from Dižvanagi. The next rehabilitation course will take place in Vaivari this summer. Gustavs is also on a waiting list for a number of aids: special feeding chair, vertikalisator, bath chair and orthoses.

One of the most important things Gustavs needs now is a special wheelchair, which will finally enable him to start going for walks with his mom. The cost of the wheelchair is 696.15 LVL.

Gustav’s mom raises her four kids alone. Gustav’s father does not live with the family, but does his best to support them when income allows. The most support is needed with the daily care and chores, and grandmother helps with that when possible. However, Gustavs needs regular motor training and massage, which is difficult for a single mom of four to arrange, given the younger kids have not started attending a kindergarten yet. To make matters worse, twins have health problems too – both girls have weak eyesight, and one of them has a heart problem.

While we were writing this story the sisters visited an ophthalmologist and were prescribed glasses, since both of them needed a significant vision correction. The cost of two pairs of glasses is 72.02 LVL.

Furthermore, the family needs a washing machine badly. They currently do all their laundry manually.

Gustav’s mom does a tremendous job, but the strength of even the most dedicated mothers is not infinite.

Let’s help Gustavs and his mom!

March 2013
Thanks to all the contributors for the support! The glasses for the sisters are paid and now we are looking for the most suitable carriage for Gustavs.














The paediatrist and neurologist from the society “Dižvanagi” say that for Gustavs it would be very important and of great value to take part in the neurorehabilitation programme. In the programme there is a 5 day lecture course, individual consultation and an individual programme is made up based on the child health situation, also 15 days long summer camp in “Dižvanagi” in Grobiņa area during which practical skills are learned (approbation of the individual programme for each child by a specialist, additional consultations etc.).

The programme costs 3000 LVL.

We still need +1566,45 LVL (from 3000 LVL, 17.07.2013*)
• We will regularly update the list of contributors and the amount of given help
• In the next photo story we will inform about the use of the donation


HUGE THANKS TO GUSTAV MARCIS AND HIS FAMILY'S ANGELS:

Anonymous - LVL 5,- (05.03.13.)
Laura Hofmane - LVL 5,- (05.03.13.)
Zane Rožkalne - LVL 2,- (05.03.13.)
Anonymous - LVL 10,- (06.03.13.)
Anonymous - LVL 50,- (06.03.13.)
Agnese Ringa - LVL 20,- (06.03.13.)
Anonymous - LVL 20,- (11.03.13.)
Lāsma Irša - LVL 10,- (11.03.13.)
Anonymous - LVL 5,- (11.03.13.)
Anonymous - LVL 3,- (12.03.13.)
Anonymous  - LVL 700,- (15.03.13.) - for wheelchair
Anonymous  - LVL 10,- (20.03.13.)
Anonymous  - LVL 5,- (22.03.13.)
Anonymous  - LVL 20,86 (EUR 30,-) (26.03.13.)
Ivars Siliņš - LVL 100,- (27.03.13.) - for washing machine
Aigars Rozentāls - LVL 5,- (02.04.13.)
KUZMA MAIGA - LVL 20,- (03.04.13.)
ZANE KILĒVICA - LVL 10,- (03.04.13.)
VALENTINA KELLERE - LVL 3,- (03.04.13.)
Anonīms ziedotājs - LVL 5,- (03.04.13.)
NADEŽDA PALAMARČUKA - LVL 1,- (03.04.13.)
PURIŅA IVITA - LVL 20,- (03.04.13.)
INESE TREILIŅA-BERGMANE - LVL 30,- (03.04.13.)
MĀRTIŅŠ IKAUNIEKS - LVL 10,- (03.04.13.)
ANITA MATISONE - LVL 10,- (03.04.13.)
ALDIS MUHKS - LVL 10,- (03.04.13.)
SILVIJA RŪTIŅA-RUTENBERGA - LVL 5,- (03.04.13.)
Anonīms ziedotājs - LVL 20,- (03.04.13.)
Anonīms ziedotājs - LVL 10,- (03.04.13.)
MIRJAMA SEITKALIJEVA - LVL 10,- (04.04.13.)
MAKSIMS PIŠČUĻINS - LVL 10,- (04.04.13.)
JURIS PĒPULIS - LVL 20,- (04.04.13.)
GAĻINA KRAVCOVA - LVL 20,- (04.04.13.)
MAKSIMS ŠPAKOVS - LVL 1,- (04.04.13.)
SERGEJS MOSKAĻENKO - LVL 10,- (04.04.13.)
INGA GEISTARDE-ZAPOROŽECA - LVL 10,- (04.04.13.)
OĻESJA POTAPOVA - LVL 10,- (04.04.13.)
Anonīms ziedotājs - LVL 5,- (04.04.13.)
TATJANA POGODINA - LVL 5,- (04.04.13.)
Anonīms ziedotājs - LVL 10,- (04.04.13.)
ANDREJS JAČŅIKS - LVL 10,- (04.04.13.)
OLGA ZEMNIECE - LVL 3,- (04.04.13.)
JURIJS SMOĻAŅINOVS - 3,- (04.04.13.)
Anonīms ziedotājs - LVL 5,- (04.04.13.)
Anonīms ziedotājs - LVL 5,- (04.04.13.)
MOISEJENKO PJOTRS - LVL 5,- (04.04.13.)
Anonīms ziedotājs - LVL 35,- (04.04.13.)
SMIRNOVA IRĒNA - LVL 2,- (04.04.13.)
Anonīms ziedotājs - LVL 1,- (04.04.13.)
Anonīms ziedotājs - LVL 100,- (04.04.13.)
TJUĻAKOVA TAMĀRA - LVL 10,- (04.04.13.)
Anonīms ziedotājs - LVL 3,- (04.04.13.)
Anonīms ziedotājs - LVL 20,- (04.04.13.)
MARKINS ALEKSEJS - LVL 5,- (04.04.13.)
Anonīms ziedotājs - LVL 5,- (04.04.13.)
Anonīms ziedotājs - LVL 1,- (04.04.13.)
JEKATERINA KUZŅECOVA - LVL 10,- (04.04.13.)
GODUNOVS BORISS - LVL 5,- (04.04.13.)
ROZENBLATS REINIS - LVL 10,- (04.04.13.)
ORLOVA LUDMILA - LVL 5,- (04.04.13.)
IGNATJEVA JEKATERINA - LVL 10,- (04.04.13.)
Anonīms ziedotājs - LVL 5,- (04.04.13.)
Anonīms ziedotājs - LVL 5,- (04.04.13.)
KUNDU ANNA - LVL 5,- (04.04.13.)
ZENKEVIČS RAIMONDS - LVL 10,- (04.04.13.)
Anonīms ziedotājs - LVL 5,- (04.04.13.)
IVANOVA TATJANA - LVL 5,- (04.04.13.)
SERGEJS FIRKSERS - LVL 10,- (04.04.13.)
NATĀLIJA PODŠIVALKINA - LVL 5,- (04.04.13.)
VITA BAUROVSKA - LVL 50,- (04.04.13.)
Anonīms ziedotājs - LVL 5,- (04.04.13.)
Anonīms ziedotājs - LVL 100,- (04.04.13.)
Anonīms ziedotājs - LVL 20,- (04.04.13.)
Anonīms ziedotājs - LVL 50,- (04.04.13.)
Anonīms ziedotājs - LVL 5,- (04.04.13.)
Anonīms ziedotājs - LVL 30,- (04.04.13.)
Anonīms ziedotājs - LVL 10,- (04.04.13.)
JEĻENA VAIKULE - LVL 14,- (04.04.13.)
JULIJA SIROŠA - LVL 10,- (04.04.13.)
PIĻŠČIKOVS VALENTĪNS - LVL 40,- (04.04.13.)
JEĻENA SAČUKA - LVL 10,- (04.04.13.)
DMITRIJS RAŠALS - LVL 10,- (04.04.13.)
Anonīms ziedotājs - LVL 15,- (04.04.13.)
TATJANA PLATONOVA - LVL 5,- (04.04.13.)
SVETLANA BLATA - LVL 5,- (04.04.13.)
ŽANNA KOMARE - LVL 5,88 (04.04.13.)
MAKSIMS ZABAVŅIKOVS - LVL 10,- (04.04.13.)
LOZDA-MANUCAROVA SOLVITA - LVL 10,- (04.04.13.)
SAVEĻJEVA NATAĻJA - LVL 10,- (04.04.13.)
Anonīms ziedotājs - LVL 100,- (04.04.13.)
Anonīms ziedotājs - LVL 10,- (04.04.13.)
Anonīms ziedotājs - LVL 12,- (04.04.13.)
DAVĶETBAJEVA OLGA - LVL 5,- (05.04.13.)
AERNA KARSAKEVIČA - LVL 20,- (05.04.13.)
MARIJA KOĻESŅIKOVA - LVL 1,- (05.04.13.)
ALEKSANDRS SERGEJEVS - LVL 5,- (05.04.13.)
ANDREJS MARTIŅUKS - LVL 10,- (05.04.13.)
ANDREJS BARMINS - LVL 15,- (05.04.13.)
DMITRIJS MAĻINOVSKIS - LVL 5,- (05.04.13.)
NADEŽDA ĀBOLA - LVL 10,- (05.04.13.)
Anonīms ziedotājs - LVL 5,- (05.04.13.)
JURIJS GRIGORJEVS - LVL 5,- (05.04.13.)
JULIJA PETROVA - LVL 5,- (05.04.13.)
TATJANA SOŅECA - LVL 3,- (05.04.13.)
Anonīms ziedotājs - LVL 10,- (05.04.13.)
Anonīms ziedotājs - LVL 5,- (05.04.13.)
IRĪNA SOZONOVA - LVL 5,- (05.04.13.)
Anonīms ziedotājs - LVL 1,- (05.04.13.)
Anonīms ziedotājs - LVL 10,- (05.04.13.)
Anonīms ziedotājs - LVL 10,- (05.04.13.)
SVETLANA PĒTERSONE - LVL 1,- (05.04.13.)
Anonīms ziedotājs - LVL 20,- (05.04.13.)
Anonīms ziedotājs - LVL 10,- (05.04.13.)
UPENIECE LIENE - LVL 30,- (05.04.13.)
KRAULE ANITA - LVL 5,- (05.04.13.)
DMITRIJS LOSKUTOVS - LVL 50,- (05.04.13.)
PĀVELS BORTŅIKOVS - LVL 50,- (05.04.13.)
MARINA VASIĻENKO - LVL 5,- (05.04.13.)
IRINA KARPENKO - LVL 5,- (05.04.13.)
MARINA ANDREJEVA-ŽUKOVA - LVL 30,- (05.04.13.)
TATJANA KULIKA - LVL 10,- (05.04.13.)
Anonīms ziedotājs - LVL 5,- (05.04.13.)
JURIJS GONČAROVS - LVL 10,- (05.04.13.)
VLADIMIRS KĻIMOVS - LVL 10,- (05.04.13.)
Anonīms ziedotājs - LVL 5,- (05.04.13.)
JEKATERINA GERKIŠA - LVL 2,30 (05.04.13.)
JULIJA MAGARILE - LVL 5,- (05.04.13.)
Anonīms ziedotājs - LVL 4,- (05.04.13.)
Anonīms ziedotājs - LVL 5,- (05.04.13.)
Anonīms ziedotājs - LVL 1000,- (05.04.13.)
Anonīms ziedotājs - LVL 10,- (05.04.13.)
ŠULTS VLADIMIRS - LVL 10,- (05.04.13.)
Anonīms ziedotājs - LVL 10,- (05.04.13.)
Anonīms ziedotājs - LVL 5,- (05.04.13.)
Anonīms ziedotājs - LVL 10,- (05.04.13.)
SVETLANA MARAĻINA - LVL 50,- (05.04.13.)
Anonīms ziedotājs - LVL 5,- (05.04.13.)
DMITRIJEVA NATAĻJA - LVL 10,- (05.04.13.)
MIŠČENKOVA VALENTĪNA - LVL 5,- (05.04.13.)
Anonīms ziedotājs - LVL 10,- (05.04.13.)
Arturs Jelohovskis - LVL 20,- (05.04.13.)
Anonīms ziedotājs - LVL 10,- (05.04.13.)
VASIĻJEVA JEKATERINA - LVL 20,- (06.04.13.)
PODJATŠEV JEVGENI - LVL 10,- (06.04.13.)
TKAČENKO MIHAILS - LVL 10,- (07.04.13.)
Anonīms ziedotājs - LVL 5,- (07.04.13.)
MEDVEDEVS ALEKSANDRS - LVL 3,- (07.04.13.)
IĻČENKO VALENTĪNA - LVL 5,- (08.04.13.)
Gertela Jelena - LVL 6,95 (EUR 10,-) (08.04.13.)
MIHAILS TRIFONOVS - LVL 30,- (08.04.13.)
Anonīms ziedotājs - LVL 20,- (08.04.13.)
JULIJA PAŠKEVIČA - LVL 20,- (08.04.13.)
Anonīms ziedotājs - LVL 10,- (08.04.13.)
Anonīms ziedotājs - LVL 5,- (08.04.13.)
ALĪNA BALABANOVA - LVL 3,- (08.04.13.)
Anonīms ziedotājs - LVL 30,- (08.04.13.)
INGA RUTKOVSKA - LVL 100,- (08.04.13.)
Anonīms ziedotājs - LVL 50,- (08.04.13.)
SERGEJS AGAFONOVS - LVL 5,- (08.04.13.)
Anonīms ziedotājs - LVL 20,- (08.04.13.)
SVETLANA BEITANE - LVL 20,- (08.04.13.)
OLGA PJAVKA - LVL 5,- (08.04.13.)
EDGARS LABSVĪRS - LVL 10,- (08.04.13.)
ALI TUTAJEVS - LVL 1,60 (08.04.13.)
Anonīms ziedotājs - LVL 2,- (08.04.13.)
VADIMS LAZARS - LVL 5,- (08.04.13.)
Anonīms ziedotājs - LVL 10,- (08.04.13.)
OLEKSANDR FRAYSHTUT - LVL 25,- (08.04.13.)
JEVGEŅIJS HRISTAFOROVS - LVL 5,- (08.04.13.)
Anonīms ziedotājs - LVL 5,- (08.04.13.)
RITA BEŽECKIHA - LVL 1,- (08.04.13.)
KREVŅEVS ĒRIKS - LVL 5,- (08.04.13.)
KOLOSOVSKA JEĻENA - LVL 20,- (08.04.13.)
Anonīms ziedotājs - LVL 10,- (08.04.13.)
ANDREY KLYASHTORNYY - LVL 100,- (08.04.13.)
Anonīms ziedotājs - LVL 4,- (08.04.13.)
Anonīms ziedotājs - LVL 30,- (08.04.13.)
DMITRIJS ZUBAREVS - LVL 5,- (08.04.13.)
VLADIMIRS BONDARENKO - LVL 10,- (08.04.13.)
Anonīms ziedotājs - LVL 4,- (08.04.13.)
KUŠELS IGORS - LVL 20,- (08.04.13.)
DACJO SVETLANA - LVL 10,- (08.04.13.)
Anonīms ziedotājs - LVL 20,- (08.04.13.)
Anonīms ziedotājs - LVL 10,- (08.04.13.)
BITIŅŠ ALEKSANDRS - LVL 5,- (08.04.13.)
SVETLANA DUBROVSKA - LVL 10,- (08.04.13.)
NADEŽDA ŅEDOSPASOVA - LVL 9,70 (08.04.13.)
EDUARDS ODIŅŠ - LVL 50,- (08.04.13.)
Anonīms ziedotājs - LVL 1,- (08.04.13.)
Anonīms ziedotājs - LVL 5,- (08.04.13.)
Anonīms ziedotājs - LVL 5,- (08.04.13.)
OSIPOVS OĻEGS - LVL 9,50 (08.04.13.)
Anonīms ziedotājs - LVL 5,- (08.04.13.)
Anonīms ziedotājs - LVL 5,- (08.04.13.)
OLGA EGLĪTE - LVL 50,- (08.04.13.)
BRJANCEVA JEĻENA - LVL 25,- (08.04.13.)
FRAGMENTUM SIA - LVL 100,- (08.04.13.)
GAVRASE MARIJA - LVL 5,- (08.04.13.)
Anonīms ziedotājs - LVL 5,- (08.04.13.)
Anonīms ziedotājs - LVL 10,- (08.04.13.)
Anonīms ziedotājs - LVL 5,- (08.04.13.)
Anonīms ziedotājs - LVL 50,- (08.04.13.)
Anonīms ziedotājs - LVL 10,- (08.04.13.)
Anonīms ziedotājs - LVL 10,- (08.04.13.)
Anonīms ziedotājs - LVL 100,- (09.04.13.)
Anonīms ziedotājs - LVL 5,- (09.04.13.)
Anonīms ziedotājs - LVL 5,- (09.04.13.)
OKSANA LOSEVA - LVL 5,- (10.04.13.)
OĻEGS IPATOVS - LVL 20,- (11.04.13.)
IVO TIMOFEJEVS - LVL 10,- (12.04.13.)
ARMĪNS MIĶELSONS - LVL 50,- (15.04.13.)
Amonymous - LVL 5,- (15.04.13.)
KALNIŅŠ KARLIS - LVL 10,- (17.04.13.)
Gintars Matiss - LVL 34,68 (EUR 50,- ) (07.05.13.)
Žanna Bondare - LVL 5,- (07.05.13.)
Zane Rence - LVL 5,- (07.06.13.)
Elita Šmite - LVL 30,- (17.06.13.)
Solvita and Edgars Koro?evski - LVL 5,- (17.06.13.)
Little Gustavs - LVL 5,- (28.06.13.)
Marika Berga - LVL 5,- (02.07.13.)
Elīna Cukunde - LVL 20,- (04.07.13.)
Rasa Vitola - LVL 5,- (05.07.13.)
Sanita Cernavska - LVL 5,- (05.07.13.)
Silvija Circene - LVL 5,- (05.07.13.)
Klinta Vuželovska - LVL 5,- (05.07.13.)
Ieva Ozola - LVL 410,- (17.07.13.)

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